CORAL GABLES, Fla. ā When Matt and Eslin Guice noticed that their infant daughter, Gianna, wasn't reaching her developmental milestones, the Coral Springs parents took her to several doctors. Ā
Eventually, Gianna was diagnosed with AngelmanĀ syndrome, a little-known and severe neurological disorder that primarily affects the nervous system. The disorder causes intellectual disability and problems with motor coordination and balance.
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"We were stunned because we had never heard of AngelmanĀ syndrome,"Ā EslinĀ Guice. "We found that it is usually misdiagnosed as autism or cerebral palsy. That's when we decided we wanted to help others."
To create awareness and raise funds for research, EslinĀ Guice and her sister, Erin Cain, are co-chairing the Angels for Angels Charity Gala. The event will take place June 2,Ā from 7 p.m. to 11 p.m., Ā at the W Fort Lauderdale. Ā
The event will feature liveĀ musical entertainment, dinner, dancing and a silent auction. Local 10's Kristi Krueger will serve as the emcee. Ā
Tickets are $250 per person and will benefit the Foundation for AngelmanĀ Syndrome Therapeutics (FAST), the largest, nongovernmental funder of Angelman-specific research in the world.Ā
"The funds we raise will accelerate the speed that a cure will be available,"Ā EslinĀ GuiceĀ said. "With research funding, it's not a question of if, it's a matter of when, and the impact could go beyond AngelmanĀ syndrome."Ā
For more information about sponsorships or tickets, contact EslinĀ Guice at eslin.guice@gmail.com, or call 954-924-1601.
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